Monday, April 23, 2012

Cancer Coach - Trained to Help Cancer Patients Along Their Journey - Could a Cancer Coach Help You?

BREAST CANCER. A CO-ACTIVE COACHES JOURNEY
by Sue Bock (guest blogger)

Breast cancer. When I first heard the words, I was stunned. The earth dropped out beneath my feet. As time passed, my feelings evolved, the roller coaster ride of emotions from high to low became more of a child’s ride. I went from craving knowledge to how will I carry myself through the journey of treatment and after. I was already a trained co- active life coach, now how will that help me?

A Co-Active Coach trained at the The Coaches Training Institute uses a “tried-and-true approach that provides a powerful process for engaging with others and is supported by current scientific research. Our program is built on the cornerstone that we are all naturally creative, resourceful and whole and that we all possess the capacity for knowing what is best for ourselves. From this place, the Co-Active Coach comes from a place of authentic being, listening and encouragement, to uncover the best in oneself and others.” This is where I started. Now I help other breast cancer survivors transition from breast cancer treatment to breast cancer thriver. Leading a fulfilling life is possible after breast cancer. After the dust settles and the “normal” life returns, a Wellness Coach partners with the client to pave a path, so to speak. The client makes choices to answer the burning question of, “what is next?”
There are many hurdles to jump after breast cancer, and a Co-Active Coach is there to soften any bumps along the road. Often after breast cancer, women (and there are some men) find themselves at a loss. No longer is the support the same. The medical team is less a part of their lives and it may feel like they are alone in their quest to find answers. Coaching is a way to creative problem solve in a positive and safe environment.

In The International Journal of Interdisciplinary Social Sciences, Pam Schmid shared the following testimonial:“Coaching made lasting, positive changes in the cancer survivors’ llives. Instead of being stuck, they have a partner to start moving ahead to be their best,” said Schmid. “As one survivor told me, ‘This is not like anything I’ve experienced. It’s given me a pathway out … I need to move forward to do the things I know I need to do to be my best’.”

I inspire women to dream, change, and live life’s adventure courageously. Breast cancer doesn’t define you. It frees you to arrive at different choices.

Cheers
Sue Bock
You can visit Sue's Courage to Adventure Coaching website by clicking here

For products that can help reduce and relieve cancer treatment side effects visit: http://www.lotstolivefor.com/

Monday, April 16, 2012

What Is An Oncology Nurse Navigator?

By Pam Matten, RN, BSN, OCN

The diagnosis and treatment of cancer and living with the disease can be overwhelming for many patients and their family members. The maze of oncology services that families are asked to go through can be intimidating and daunting. A nurse navigator is a professional who comes alongside the family undergoing the cancer crisis. He/she may follow the patient from pre-diagnosis through the continuum of care. The navigator will ensure that the patient is given timely care for appointments, tests and procedures. She educates the patient on treatment options, medication and chemotherapy side effects, and clinical trial options. She may also provide psychosocial support to the patient and family. The navigator will provide resources and referrals to the family such as: financial assistance, support groups, transportation options and complimentary wellness opportunities. The nurse navigator role is integral for families as they navigate through the complexities of cancer care.

Most National and community cancer centers are using nurse navigators for individual types of cancer. For instance, there may be breast nurse navigator who deals specifically with patients diagnosed with breast cancer. It is important to understand that the role of navigator is diverse. You may find lay navigators who reach out to a particular community of patients or lay navigators who assist with more specific care such as those who coordinate initial consultations for treatment. If you are fortunate to be offered a lay or professional navigator I believe you will find them to be individuals who offer empathy and support during a difficult time. If you are not made aware of navigation services when you are newly diagnosed you can ask either your physician or cancer center if navigation services are provided.

Submitted by Guest Blogger:
Pam Matten, RN, BSN, OCN
Pam Matten is an oncology-certified nurse, specializing in thoracic oncology. She has been the Nurse Navigator for lung cancer patients at the Center for Cancer Prevention & Treatment, St. Joseph Hospital, orange. CA for over 9 years. Pam is also a public health nurse, tobacco treatment specialist, health instructor and yoga teacher.

For more information about oncology nurse navigators:

To find products to help reduce and relieve cancer side effect symptoms visit: http://www.lotstolivefor.com/

Tuesday, March 27, 2012

Lots To Live For, Inc. Featured in Interview in the On and Off the Mat Blog by Embrace Activism

Lots To Live For, Inc. is featured in the On and Off the Mat Blog under the "Power of Love" series of blog posts. Margot Malin, President, CEO and Founder of Lots To Live For, Inc. is interviewed by Karen Whittier, Chief Activist at Embrace Activism about the inspiration and genesis of the company.  Lots To Live For, Inc is an internet retailer that sells carefully selected products to reduce and relieve the uncomfortable and unpleasant side effects caused by chemotherapy and radiation. The genesis and inspiration for this company came after the passing of two close family members following their courageous battles with cancer. The company mission is to provide options and support to others who are going through exhausting and debilitating chemotherapy and radiation oncology treatments. Put simply: We recognize that you have "lots to live for" and we offer solutions so that you can improve the quality of your life.
An few excerpts from the interview follow:

Karen:  Both your mother and grandmother battled cancer. Were their cancers found early?
Margot: Luckily research and discouvery in medicine continue to progress so both treatments and diagnoses have advanced over the years. So there is a double benefit: cancer is being found earlier, and the treatments have improved significantly. Sadly, the cancer was not found early in either my mother or grandmother. In fact both had already progressed to Stage 4 when they received their diagnoses.
Karen:  More than a handful of cancer patients have commented on the toll cancer treatments take. What types of treatment did your mother and grandmother have?
Margot: Between the two of them all of the weapons against cancer were used: surgery, chemotherapy, and radiation. All three "weapons" have improved over time. Surgery is more precise, there are better and more targeted types of chemotherapy, and the radiology equipment has become more precise and focused. Unfortunately, even with all the improvements in medicine and technology, treatment can still be exhausting and debilitating.

Karen: What types of products are available through Lots to Live For, Inc?
Margot: This is my favorite question because we have so many wondeful side effect solutions! We sell helpful products ranging from nutitional supplements to topical skin, hair and nail products and much more. All these products help you improve the quality of your life while you are going though treatments that may effect your skin, hair, nails and mouth, and also make you tired and nauseous. Our products help these side effects. We carry a number of different product lines including Haelan 951, Thymuskin Hair Care items, RADX and SolRx products, Lindiskin Skin Care products, Alra products, Biotene Oral Care, My Girls Cream, SkinFree, CoolMagic gel sheets, Biobands for nausea and software from Minerva Health Manager to organize health records. We have a complete line of products for radiation skin care, radiation dermatitis and radiation burns. I should also mention that one of our most popular and most important product lines is Cancer Gifts. Of course any of the items we sell can be purchased as a gift, but we also have some uniquely themed gift sets for specific side effects ("Mouth Moisturizer", "Help for Hair", "Radiation Burn Care Kit", etc) which make expecially caring and thoughtful gifts. These gifts help to express your support and concern. You can write a note on our website order form which will be enclosed with the gift and sent directly to the recipient. We also sell gift certificates.

To read the complete interview please click here: On and Off the Mat Blog Interviews Lots To Live For!  
As Karen says at the conclusion of the post "Please share this Power of Love story with anyone you know battling cancer and/or caregivers. Visit the Lots to Live For website, Cancer Blog and, if you're on Facebook, be sure to 'like' their page. Cancer patients may be more keenly aware, but we ALL have lots to live for!"
More about the On and Off the Mat Blog:  in the Power of Love series Karen interviews individuals to explore why they started their foundations, charities or businesses, and what their hopes, goals or missions are. A couple of past posts were about Vivyn Lazonga, a tatoo artist specializing in body art for breast cancer patients and Robin Thomas, promoter of Heatlth and Wellness.
Embrace Activism creates purpose-driven yoga; improving the health and wellness of yoga practitioners and contributing to various health-related charities.

Tuesday, March 6, 2012

EXERCISE AND CANCER - PART 3 - ADD YOGA TO YOUR POST CANCER ARSENAL

For this post guest blogger Karen Whittier, Registered yoga teacher (RYT) and Chief Activist for Embrace Activism shares her thoughts about Cancer and Exercise, and why you might want to add Yoga to a post cancer exercise regimen.  Stay tuned for upcoming posts about Exercise and Cancer on the Lots To Live For! Cancer Blog.
Add Yoga to Your Post Cancer Arsenal

Though yoga originated as a way to meditate, to foster clear thinking and decision-making, the physical benefits yoga can bring are the ones emphasized more here in the West. Yoga does make positive changes to the body: increasing flexibility, improving balance, increasing your strength and the general tone of the body. But yoga can be so much more. Yoga’s value and impact on the mind and spirit should not be discounted. That’s especially true for cancer survivors.

The “C” word is very unsettling; everything you thought your life might hold gets put on hold. That one word has the power to keep every aspect of your life revolving around it. Have you been told you had cancer? What was the first thing you thought of? Did it feel like a death sentence? Did you go into denial thinking there must been a mistake in one of the tests? Did you accept the possibility, but resolve to find out more? Reactions are about as varied as each individual, but I don’t think anyone thinks they’ll be the one to develop cancer

The type of cancer, and its stage when discovered, determines the type of treatment prescribed. Most treatments take a lot of fortitude on the patient’s part. There can be more lab work required. There might be more xrays, MRIs or CT scans needed. Sometimes radiation is involved; sometimes chemotheraphy is needed; sometimes surgery is the only option. Whether your treatment plan includes surgery, radiation, and/or chemotherapy your body will have to withstand a major assault. It all takes time, but you can feel like you have precious little time to spare!

Once you’ve come through the other side of cancer there’s a little cloud that can hang over your head….recurrence. Are you questioning each ache and pain? Does a simple cold signal the start of another round of cancer to you? It’s understandable to be fearful. It wasn’t that long ago that a diagnosis of any cancer was synonymous with death. That’s not the case anymore. Inroads have been made to detect cancer at its earliest stage where the chance of survival is greatest. New treatment methods that target the cancer cells without damaging surrounding cells are available. But, the thought of a single cancer cell adrift within your lymph system waiting to take root can persist. It is my contention, if you’re living under that cloud of recurrence you’re letting cancer triumph.

This is where the mind and spirit benefits of yoga can be invaluable. From the moment you received the news of your cancer, your body has been at the mercy of your health care team. Their knowledge and experience gave them decision-making powers. Yes, you had to agree to it all, but the medical protocols are dictated by them. It is your body though, that’s subjected to an invasive onslaught of exploration and discovery. There is stress on the body even if your treatment plan includes the use of advanced medical equipment like the da Vinci Surgical System However, when you step onto your mat, YOU are the one in control. You monitor your body throughout practice determining just how much (or how little) that practice is for the day. Your practice may consist of lying comfortably on your back, with blocks and bolster offering support, for 5 minutes of deep breathing or listening to a guided meditation. You can decide what asanas (poses) are appropriate for you knowing what benefits those asanas bring to your body. In other words, yoga empowers YOU. It puts you back in control over your body. This sense of control, of reclaiming your life is monumental in importance. Additionally, evidence is showing how important physical exercise can be during treatment with one of the benefits being a reduction in cancer treatment side effects.

When you step onto your mat and begin your practice, your focus is narrowed to the here and now. Worries and anxiety over what may lie ahead are suspended as you concentrate on the breath…following the breath, the life-giving breath, on its journey inward. Can you feel the rush of oxygen? Can you imagine the blood taking the oxygen and other nutrients out to the farthest reaches of your body? Feeding your body; providing your body with the fuel it needs to perform. The breath cleanses your body with its exhales; removing carbon dioxide and other wastes. Most of us are so accustomed to breathing we don’t ever think about what’s involved or what it does. What does this realization awake within you? Awe? Gratitude? Both? Relief is probably in the mix of feelings too. And the more you practice the longer that interval that suspension of worry and anxiety can be. With continued practiced you can cultivate an awareness of peace and tranquility that you can take off your mat. This benefit of yoga, of cultivating a mindset of peace and tranquility that is available at any time, can be useful during cancer treatment as well.

Worry and anxiety are understandable, but persistent worry and anxiety is counter-productive; the negative effects of stress on your body’s immune system are well documented. Use your yoga practice to empower yourself, bolster your immune system and tap into peace and tranquility at any time. Your body came through the cancer battle; let yoga give you the tools to bring your mind and spirit to victory too.

Health, Wellness & CURES!!
Karen Whittier

Karen Whittier is a  Registered yoga teacher (RYT) and Chief Activist for Embrace Activism. Embrace Activism is the online source for yoga products with a CAUSE: Premium yoga products that will enhance your practice on the mat, a charitable-giving program that takes your practice off the mat. Using Embrace Activism yoga products transforms your practice into purpose-driven yoga.

About EmbraceActivism -website: http://www.embraceactivism.com/
This post also appears simultaneously on Karen's On & Off the Mat Blog and is republished here with her permission.
‘Like’ the EmbraceActivism Facebook page: www.facebook.com/EmbraceActivism    

For products that can be helpful for cancer side effects such as radiation dermatitis and radiation burns visit http://www.lotstolivefor.com/. Lots To Live For, Inc. also sells items for chemotherapy induced mouth sores, dry mouth, compromised skin, itchy scalp, nausea, and other uncomfortable treatment related issues.
More blog posts on Exercise and Cancer will follow on http://www.lotstolivefor.blogspot.com/
'Like' Lots To Live For! at: www.facebook.com/LotsToLiveFor


Monday, February 27, 2012

Lots To Live For, Inc. - 2012 StartupNation Leading Moms in Business Competition

Lots To Live For, Inc. - 2012 StartupNation Leading Moms in Business Competition

Lots To Live For, Inc. has entered Startup third annual Leading Moms in Business competition to celebrate America's top mom owned business, and the women behind them.
Please support Lots To Live For, Inc. by clicking here: CLICK HERE TO VOTE 
Lots To Live For, Inc. - 2012 StartupNation Leading Moms in Business Competition
Lots To Live For, Inc. is an internet retailer that sells carefully selected products to reduce and relieve the uncomfortable and unpleasant side effects caused by chemotherapy and radiation. The genesis and inspiration for this company came after the passing of the founder's mother and grandmother following their courageous battles with cancer. The founder wanted to provide options and support to others who were going through exhausting and debilitating treatments. Put simply: We recognize that you have “lots to live for” and we offer solutions so that you can improve the quality of your life.

Some of the side effects that we offer solutions for are:
•Products to help heal and soothe radiation burns
•Cancer skin care products for sensitive and compromised skin
•Cancer hair care products to reduce hair loss and stimulate hair regrowth
Oral care items for dry mouth and mouth sores
•Nutritional products to help boost the immune system.
Cancer gifts for individuals undergoing radiation and chemotherapy
•Easy to use Personal Health Record Organizer software — by Minerva Health Technologies.
•Natural, Botanical and Homeopathic products to relieve cancer side effects
•Products for the Relief of Nausea associated with chemotherapy
•An all natural Skin Care line of products made without perfumes or chemicals
•Post radiation sun protection products
•Nail protection and rejuvenation products
Our goal is to help you feel the best you possibly can. We hope these products will help enable you to live your life normally despite your health issues.
We treat our customers with dignity and respect. Our prices are competitive and our service is compassionate and responsive. Our goal is for all customers to become repeat customers, and that they recommend us to their circle of caregivers and friends.
The photo shows our logo and a picture from 1987 of the founder, her mother and grandmother. This is the last picture taken of all three generations.  The circle of life continues - the founder now has three children of her own.
You can visit the Lots To Live For, Inc. website and view all the helpful products for cancer patients and survivors at: http://www.lotstolivefor.com/
Please like us on facebook at: www.facebook.com/LotsToLiveFor

Thursday, February 16, 2012

EXERCISE AND CANCER - PART 2

Exercise for Cancer Patients and The Importance of Exercise in Cancer Recovery
by Carol Michaels, Owner and Founder of Recovery Fitness
Recently named one of "America's Top Personal Trainers to Watch"
Carol is a cancer Exercise Specialist and works with patients in a number of locations around Short Hills, NJ

This article will discuss the importance of exercise in the recovery process. In a subsequent article, I will describe unique and safe exercises that can be adapted to the different types of reconstruction and fitness levels.

When some people hear the word exercise, they immediately think about gym class exercise or boot camp. The exercises that I will discuss are gentle, fun and effective. They are not high intensity. Exercise might be the last thing on your mind after a cancer diagnosis. A good fitness program will help you build up your strength, improve your mood and will help your recovery.
Just to give you some background on myself-I am a cancer exercise specialist. Cancer has been a part of my life for 30 years. This disease has affected my family and friends. And because of that, I was motivated to develop an exercise program to help them. I have worked with hundreds of cancer survivors helping them improve their quality of life through their participation in my Recovery Fitness cancer exercise program which helps cancer survivors feel better physically and mentally.
When can you start a fitness program? You should start stretching exercises as soon as you get clearance from your doctor. It is important to talk to your doctor before starting to exercise. This way you can determine what program is right for you. Some exercises can be started soon after surgery while others can be done right after the drains and stitches are removed.

Many areas of the body can be affected by breast cancer surgery and treatments. A lot of people complain about stiffness, pulling, tightness, and having less flexibility. The muscles and skin are shortened because of the surgery and there is scar tissue. Some of the nerves may be irritated. You may feel burning, tingling, or numbness. We want to restore the patient to a level of fitness that they enjoyed prior to the surgery. Initially, one of the goals of this program is to restore a person's range of motion and break down scar tissue.
At the start of your exercise program the cancer exercise specialist will take range of motion measurements of the shoulder. I take flexion, extension and abduction measurements. For example the participant may begin with only 30 degrees of shoulder flexion and after several months improve to 170 degrees of flexion range of motion. In an ideal situation it is helpful to take these measurements prior to the surgery. This gives you a basis of comparison.

Once you have achieved an acceptable range of motion, it is usually necessary to continue your stretching program in order to maintain the ROM that has been achieved. If you have radiation, stretching is very important to help keep your body flexible. Radiation typically causes additional tightening. Radiation can impact the affected area for up to 9 months or longer after the treatment is finished.
Another reason to exercise is because posture is affected by the surgery. After surgery to the chest it is common to want to protect the area by rounding the shoulders forward. Winged scapula and rounded shoulder are common. Kyphosis or a head forward posture can be caused or exacerbated by tight chest muscles. This can cause a chain reaction leading to neck and back pain.

A mastectomy without reconstruction can cause imbalances. Some of the reconstruction processes change the muscle placement, which can effect the body. It is important to stretch the pectorals, which can tighten and strengthen the back and core muscles. This is done to improve posture and decrease the chance of back and neck pain. Good posture is important for overall health. Poor posture can create imbalances in the rest of the body. This can be detrimental to the back, knees and other areas.

Your balance can also suffer after surgical procedures. We find this to be especially acute with the TRAM flap procedure where the rectus abdominus is altered. Poor core strength has a negative effect on balance. You will have to learn how to compensate for this change of muscle placement through a series of exercises designed to strengthen the remaining muscle such as the obliques. Balance can deteriorate as we age even without a cancer diagnosis. Some of the chemotherapies can affect your balance. Neuropathy can cause balance issues. The good news is that balance training can counter some of the effects of muscle imbalances and body asymmetry after surgery. Balance training will help decrease the likeliness of falling. Falls are dangerous for older women with weaker bones and for cancer survivors. Cancer survivors are at higher risk for osteoporosis due to chemo and cancer medications. Being nervous about falling may cause you to withdraw from daily activities and decrease quality of life. We need to exercise to maintain or improve balance.

After you have achieved an acceptable ROM, posture, and balance, strength training is added. Why do we need strength training? After surgery the patient can lose strength in the chest, shoulders, abdomen or back. We need to rebuild strength in the areas affected and keep all the muscles in the body strong and correct muscle imbalances. Strength training improves balance and posture by improving core strength and it improves quality of life by making activities easier and more enjoyable and it reduces the chance of injury. It can empower you physically and mentally.
Another reason to strength train is that chemotherapy can cause weight gain. It can change the fat to muscle ratio. Strength training improves the muscle to fat ratio. We need to gain muscle mass, which can decrease during treatments and strengthen bones. Having more muscle will increase metabolism. A pound of muscle burns twice as many calories as a pound of fat. So strength training is a great way to keep your weight at a healthy level.

Many of the treatments can increase the risk for osteoporosis. Strength training helps build strong bones. Osteoporosis can be an issue and the exercises must take this into account. You need to learn which exercises are contraindicated for osteoporosis. For example, you would not do an abdominal crunch or extreme twisting movements. Before you can start to strength train you must have upright posture, balance, good rom and medical clearance.

Aerobic exercise is essential. That would include any movement which elevates your heart rate. As soon as you have medical clearance it is good to start walking. Chemotherapy and radiation can cause fatigue. It may seem counterintuitive, but physical activity can help decrease fatigue and help you improve your ability to tolerate treatments. Walking can boost your energy. You might be able to walk only 1 house distance at first. Every day try to walk further until you are able to walk for a half hour to 45 minutes. Try to exercise when you feel the least tired. You may feel exhausted at various times during treatment and recovery especially during chemo or radiation. When you feel better, try to do more. Ultimately the workout will help energize you and ease the aches and pains.

Exercise is good for our emotional health. It is one thing that you can control. It is one thing that you can do for yourself. The studies are leading us to believe that exercise can decrease the risk of recurrence. It is empowering. Physical activity can decease depression and anxiety. Participants in my program reduce stress, increase confidence and build positive health habits. The participants will also gain endurance, and energy level and decrease fatigue, which may be caused by treatments.

Stay tuned!  Carol will soon have a demonstration exercise DVD available.
You can contact Carol through her website Recovery Fitness.

For products that can help to improve the quality of life for cancer patients and survivors please visit the website Lots To Live For, Inc.  which offers one stop web shopping for patients combating unpleasant side effects from chemotherapy and radiation treatment.

Wednesday, February 15, 2012

EXERCISE AND CANCER - PART 1

Many cancer patients wonder whether exercise will be helpful or detrimental to their health and recovery. An article that was published in "Medicine & Science in Sports and Exercise" suggests that a carefully designed exercise program, developed with the guidance of a knowledgeable fitness professional can be helpful for cancer patients and survivors. Here are some important excerpts from the article:
"Early detection and improved treatments for cancer have resulted in roughly 12 million survivors alive in the United States today. This growing population faces unique challenges from their disease and treatments, including risk for recurrent cancer, other chronic diseases, and persistent adverse effects on physical functioning and quality of life. Historically, clinicians advised cancer patients to rest and to avoid activity; however, emerging research on exercise has challenged this recommendation. To this end, a roundtable was convened by American College of Sports Medicine to distill the literature on the safety and efficacy of exercise training during and after adjuvant cancer therapy and to provide guidelines. The roundtable concluded that exercise training is safe during and after cancer treatments and results in improvements in physical functioning, quality of life, and cancer-related fatigue in several cancer survivor groups. Implications for disease outcomes and survival are still unknown. Nevertheless, the benefits to physical functioning and quality of life are sufficient for the recommendation that cancer survivors follow the 2008 Physical Activity Guidelines for Americans, with specific exercise programming adaptations based on disease and treatment-related adverse effects. The advice to "avoid inactivity," even in cancer patients with existing disease or undergoing difficult treatments, is likely helpful."
You can view the entire article entitled "American College of Sports Medicine Roundtable on Exercise Guidelines for Cancer Survivors" (July 2010 issue)
In our next blog post we have invited a cancer exercise specialist to share her experience about the importance of exercise in the cancer recovery process.
(source of picture: Associated Press, Arizona Daily Star)
To view products that can improve the quality of life for cancer patients please visit Lots To Live For, Inc.