This is a condensed version of a blog post entitled "Donate Your Data– Share your Cancer Story to Help Yourself While Helping Others"
A decade ago, Internet entrepreneur Marty Tenenbaum was diagnosed with melanoma. He visited several local oncologists, but each doctor recommended a different treatment strategy. With no clear solution, he decided to enroll in a clinical trial that was testing a melanoma vaccine.
|Donate Your Data Dashboard|
The vaccine failed the trial. But, for reasons unknown, it saved Tenenbaum’s life.
Inspired by the difficulty of navigating his options, and the need for better ways to figure out which treatments will work for which patients, Tenenbaum founded Cancer Commons—the first & only open access nonprofit collecting and learning from real patient experiences to give patients the information they need.
To support this mission, Cancer Commons has now launched its new Donate Your Data (DYD) Program, an online registry that empowers people with cancer to anonymously share their cancer experiences to advance research and, in return, inform their own clinical care.
To learn more about Donate Your Data please watch this video:
For now, DYD is available only to lung cancer and melanoma patients, but Cancer Commons will soon be expanding to cover most cancers. If you have or have had melanoma or lung cancer, please consider joining Cancer Commons in making the dream of personalized cancer treatment a reality for everyone. DonateYour Data now.
For more information, visit http://www.cancercommons.org. Follow Cancer Commons on Facebook and Twitter.