This is a condensed version of a blog post entitled "Donate Your Data– Share your Cancer Story to Help Yourself While Helping Others"
A decade ago,
Internet entrepreneur Marty Tenenbaum was diagnosed with melanoma. He visited
several local oncologists, but each doctor recommended a different treatment
strategy. With no clear solution, he decided to enroll in a clinical trial that
was testing a melanoma vaccine.
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| Donate Your Data Dashboard |
The vaccine
failed the trial. But, for reasons unknown, it saved Tenenbaum’s life.
Inspired by the
difficulty of navigating his options, and the need for better ways to figure
out which treatments will work for which patients, Tenenbaum founded Cancer
Commons—the first & only open access nonprofit
collecting and learning from real patient experiences to give patients the
information they need.
To support this
mission, Cancer Commons has now launched its new Donate
Your Data (DYD) Program,
an online registry that empowers people with cancer to anonymously share their
cancer experiences to advance research and, in return, inform their own clinical
care.
To learn more about Donate Your Data please watch this video:
For now, DYD is
available only to lung cancer and melanoma patients, but Cancer Commons will
soon be expanding to cover most cancers. If you have or have had melanoma or
lung cancer, please consider joining Cancer Commons in making the dream of
personalized cancer treatment a reality for everyone. DonateYour Data now.
For more
information, visit http://www.cancercommons.org.
Follow Cancer Commons on Facebook and Twitter.
