Tuesday, November 27, 2012

Why is Our Breath so Important for Cancer Recovery?

Breathing for Cancer Recovery - Calm and Relaxation -  Managing Stress, Fear, Pain and Anxiety

By Diana Ross, Guest blogger

“Close your eyes and gradually bring your breath into your mind’s awareness. Experience each inhalation as it draws fresh energy in; feel the exhalation emptying you, carrying away fatigue, stress and unnecessary thoughts. Let your breaths flow softly and smoothly from one into the next without hurrying or pressing between breaths. Now breathe in, and breathe out.” Diana Ross

We hear from time to time the familiar saying “take a deep breath” when we become stressed, anxious or over excited. Ever wonder why? There are many reasons why but most notably taking a full, deep conscious breath has been known to settle us down when we are nervous or upset.

We create this internal calm by consciously tuning in to our breath. The immediate result of tuning into your breath is the ability to obtain control of your emotional state of mind. The positive potential which comes from controlling your breathing results in facilitating recovery from surgery and beyond. This healing ability of breathing consciously works by calming nerves and inviting relaxation. The immune system also benefits from proper breathing cycles. By conscious breathing we bring the mind/body/spirit state into balance and the nervous system runs with maximum efficiency.

Balancing the breath serves to maintain and equalize the complete breath cycle. The goal of conscious breathing is to have both inhalation and exhalation identical in volume and duration thus creating the natural flow of the breath. This natural flow brings the quiet mind with it. Concentration will be higher during this equalized state and invite a meditative mind. A meditative mind cannot happen until the breath is brought under control. You see now how vitally important the breath is in wellness and how it heals.

Habitually we resort to unconscious shallow breathing and therefore do not utilize our true lung capacity when we create uneven inhalations and exhalations. As you begin to focus on your breathing for the health benefits it may reap you may notice that your airflow might be unequal. Do not be concerned. It is a natural phenomenon, and you need not resort to any other method; just continue to practice breathing with awareness. Strive for an equalized airflow through both nostrils. Also in the effects of the new breathing practice may not be felt right away, but after a few sessions the results will become obvious. It is only through practice that we begin to master the conscious breathing practice, so don’t get discouraged. When practicing breathing techniques (pranayama) the mind will become still, and eventually the breath will become even. The energy we normally spend engaging and processing the world around us begins to bend inward and we begin to see with more clarity.

Breathe With Purpose CD
The importance of training the breath becomes a powerful tool in managing stress, fear, and anxiety as well as recovery. A focused breathing technique assists in restoring energy and calming the mind, so we need to breathe with greater awareness. The breath is an amazing vehicle in that it is always present. It is effective at every level of self inquiry and acts in both a preventative as well as a restorative manner. Once we bring an awareness of the breath into the moment, where it is most needed, we can then improve our quality of life. We can enjoy quiet moments of meditation: we can enjoy our be-ing.

We can begin or continue to heal. We can enjoy being present.

Diana Ross, E-RYT500, CYT, Certified KaliRay TriYoga
Founder, Breast Cancer Yoga

Breast Cancer Yoga has a Two Breathing CD series “Breathe with Purpose, and Breathe for Health and Wellness.” It has a series of breaths that are easy to learn. You are guided the entire time, breath by breath. You can purchase them on the website.

Sunday, November 18, 2012

6 Tips To Prepare Healthy Holiday Foods

Brought to you from the Pink Kitchen, for breast cancer survivors and those who love them!

by Lisa Grey, Guest Blogger, Cancer Survivor and Thriver and Founder of the Pink Kitchen  

The holiday season brings with it many joys; and one of our favorite ways to share joy with our loved ones is through sharing food: parties, family meals, and sweets passed around at the office or the neighborhood.

I don’t mean to be a Grinch – but all of this momentary joy wreaks havoc on our bodies.
With Thanksgiving right around the corner - and all the culinary treats it brings – this may be the very last thing you want to hear. But hear me out, friends. I would never go so far as to suggest that you give up all holiday goodies. That would be setting you – and me! – up for failure. From time to time, we all want to indulge in a famous holiday cookie that takes us back to childhood, or perhaps a special dish that warms us on a chilly holiday evening.

But there are a few ways that we can ease the burden on our bodies. While you can’t control what other people serve, you do have some control over what you serve in your own home, or what you bring to someone else’s table. And there truly are ways to eat scrumptious foods that also happen to be healthy. Here are six tips to get you started.

• Fresh cranberry sauce is easier than you think. It also tastes much fresher, and has a vibrant, gorgeous color. Try the easy recipe below, and you may never go back to your old cranberry sauce!

• Use vegetarian broths to make gravy. Meat broths tend to be high in fat and calories. On the other hand, vegetable broths are low in calories and fat, but are still full of flavor. This brings us to our next tip.

• Use millet flour to thicken gravies and sauces. Millet flour is yellow in color. It is much healthier for you than all-purpose flour because it comes from a whole grain, providing nutrients such as . You can find millet flour in healthier grocery stores such as Whole Foods or online.

Rosemary Lemon Gravy on Turnip Mashed Potatoes
• Mash some turnips with your potatoes. Sound crazy? Be brave and give it a try. Turnips are very low in carbs. When blended with potatoes, you may not even taste them. But you are adding nutrition, as well as lowering calories.

• Give your sweet potatoes a healthy makeover. Put down those marshmallows. Sweet potatoes, as their name suggests, are naturally sweet. Just fill a casserole dish with chopped sweet potatoes. Then add cinnamon, coconut oil, and just a touch of maple syrup, agave syrup, or brown rice syrup.

• Substitute coconut oil for butter. We all know that butter clogs our arteries. But coconut oil promotes a healthy heart. There are two types of coconut oil. One is unrefined, which tastes like coconut. The other is naturally refined. Refined coconut oil, which has no flavor, can be used in place of butter in any of your savory dishes.

If you follow the tips above, you can satisfy your craving for a hearty holiday meal, while taking care of your body at the same time. If you think about it, that’s the best holiday gift you can give yourself. After all, the healthier you are, the more holidays you will likely be around to celebrate!

Easy Fresh Cranberry Sauce
(Serves approximately 8)
Ingredients:
1 bag fresh cranberries
2/3 c. pitted dates
1 orange, peeled
1 apple, cored and cut into quarters
1/4 tsp. ground cloves
1 tsp. allspice

Core the apple.
Peel the orange, removing seeds.
Place dates in food processor. Pulse until they start to break down.
Add the orange, apple, cranberries,and spices.
Blend until combined, but slightly chunky.
Enjoy!

Lisa Grey, founder of the Pink Kitchen, knows a thing or two about nutrition. When she was diagnosed with breast cancer, Lisa used nutritious foods and herbs to help her attack the disease. Her goal was to do whatever she could to destroy the cancer and keep it away.
Since then, Lisa has had a passion for sharing simple, quick, and delicious ways to eat nutritiously…not only for breast cancer survivors, but for anyone overwhelmed with the prospect of healthy eating. Out of this passion, Pink Kitchen was born.

To browse holiday gift ideas for cancer patients please visit Lots To Live For, Inc. at: http://www.lotstolivefor.com/category/cancer_gifts


Tuesday, November 13, 2012

5 Point Plan for Better Cancer Outcomes: Focus on a Natural Approach to Cancer

Complementary Medicine Options and Life Style Choices to Help Cancer Patients From a Patient/Advocate Perspective

By Ann Fonfa (founder Annie Appleseed Project), guest blogger

I was diagnosed with (breast) cancer in January 1993 at the age of 44. At the time I was suffering from extreme Multiple Chemical Sensitivity. I felt that the oncologist I consulted was incredibly dismissive of a health issue that caused me to take to my bed 3-4 days at a time. I was reacting with long-lasting headache, dizziness, nausea, rashes and more from exposure to fragrances, cleaning products, wet paint, formaldehyde (new furniture/carpeting), etc.

So I chose to explore what was then called Alternative medicine. My search brought me a lot more information than expected – specifically a wealth of information about nutrition - which is where I started. At this point most people have heard what is healthier to eat, but some have resisted actually doing it. If you want to reduce your risk of cancer occurrence, recurrence or to just be healthier, you MUST give up so much sugar, NO soda, and NO deep-fried foods. It’s that simple – these items (chips are deep-fried), are just not real food. We’ve let ourselves fall into these awful habits, so darn easy to eat chips at lunchtime instead of a salad or an apple.

Back to alternative cancer ideas: After some years, yoga became totally acceptable to the point that many cancer centers and most support groups offer it. Studies have shown that it really makes a difference to our health. The concept of complementary therapies was introduced and has gradually become accepted. There are simple and natural substances and protocols that could reduce toxicity and enhance the value of chemotherapy and/or radiation. (Here’s our Free Handout of Natural Strategies to Reduce Toxicities). Complementary therapies began to be called integrative because they COULD be used while undergoing conventional treatments. Let’s face it, the treatments offered by the mainstream cause harms – ranging from short-term to longer-lasting. Why is this allowed even now?
I have been gathering information about cancer prevention and treatment, and sharing it via the nonprofit I founded in June 1999: www.annieappleseedproject.org The Annie Appleseed Project provides information, education, advocacy and awareness for people with cancer and their family and friends. The Annie Appleseed Project offers information on natural therapies and substances, lifestyle issues, and complementary or alternative medicine, from a patient’s perspective. This is gathered in part from our network of volunteer advocates who attend educational cancer meetings around the globe, from medical, scientific/research journals, and emails from supporters.

It’s out there, it’s been studied. Sadly many researchers feel the need to look at natural substances the same way pharmaceuticals are examined, even though many natural items have been shown, during hundreds or thousands of years of human use, to be quite safe (except for personal allergy). Doctors have been taught to expect pharmaceutical-style clinical trials – but here’s the catch. The cost of a clinical trial, what is called Level 1, is in the hundreds of millions and natural protocols simply cannot be patented (nor should they), thus no pharmaceutical company is interested. This barrier is one I wrote about in a journal article many years ago and this still has not changed. Another major issue that blocks the full use of complementary therapies is the lack of insurance reimbursement.

The Annie Appleseed Project has a five point plan for better health in general and better outcomes if you have been diagnosed with cancer:

1. Eating Right If someone wishes to do a range of inexpensive, simple and protective things, start with healthier eating – adding more fruits and vegetables to the diet. Remove SODA and Deep-fried foods, eat less sugar and less salt; and add whole grains.

2. Physical Activity Take a walk, dance, shake, swim, bike, etc. on a daily basis. Good news from author Antronette (Toni) Yancey, MD, MPH, whose book Instant Recess explains her theories. Just 10 minutes a day of physical activity, full-out, is enough to keep our bodies healthy. Many studies have shown that physical activity is very beneficial to people going through treatment for cancer, or in recovery. Combining physical activity with healthier eating is EVEN better than either separately – studies show that too.

3. Dietary Supplements Fish oil, probiotics, vitamin D3 and curcumin are the basics because everything else depends on what you personally may need. You can visit a clinical nutritionist who does blood work, or you can get your own eating patterns assessed. Your doctors can test you for vitamin D3 but it seems from the recent work done in this area, that almost no one has enough vitamin D3. Make sure you supplement if you are low. The darker your skin, the more vitamin D you may need.

4. Detoxification We live in a world filled with chemical exposures, as a chemically-sensitive person (although I am so much better than I used to be); I KNOW when the air is bad. Plastic materials surround us, many being shown to be harmful. Pesticides in our food supply, and our water, formaldehyde and parabens in our clothing, furniture and hair/skincare products are all part of this problem. But some detoxification is possible – cilantro, dandelion leaves OR parsley can help the body remove heavy metals – one of these should be eaten every day. Making fresh (organic) raw juices can help a lot too. Using hot and cold showers, foot baths, far infrared saunas and more, can all help detox. Again our website can be a help in finding ideas. Always drink lots of water – do you have a simple filter? It’s better to filter your water than drinking it straight up these days. Try to drink from a BPA-free carry bottle.

Never use plastic in your microwave, better yet - DON’T use the microwave. It is really a time management issue. If you know you want to eat at 6:30, turn your oven (or toaster-oven) on ahead of time. Or eat a BIG salad for dinner. Some say eating less at night is healthier. I personally eat a big breakfast, a salad for lunch, and often fruit and nuts for dinner.

5. Relax and Enjoy Life Yoga and meditation are not the only ways to relaxation – that which gives you pleasure should be your focus too. Are you a gardener, a grandparent, a bowler – focus on your joy in action. I attended a meeting in Brussels, Belgium in 1999 – the second international conference ever held by the National Breast Cancer Coalition. My sister came with me as we planned, excitingly, to travel to Amsterdam together. She was astounded by the party held at the end of the conference. I asked her whether she thought we ought to be sitting around and crying instead of dancing? She realized then, as we all should, that life is RIGHT NOW. We are meant to enjoy this moment. If I had spent the last almost twenty years worrying about dying from cancer, that would have been an enormous waste of my life.

Happily I didn’t. I enjoy each day and live it fully. You should too.


For those seeking more information you can visit our Annie Appleseed Project Facebook page, follow us @annieappleseed on Twitter, visit our website www.annieappleseedproject.org (you can opt in for our monthly e-newsletter). We’ll host Evidence-based Complementary & Alternative Cancer Therapies conference February 28-March 2, 2013 in West Palm Beach, FL. Some scholarships are available for those in need. We offer CEs and CNEs for professionals. 5 organic meals, exhibits, networking, giveaways, much more. Ann Fonfa is the founder of the Annie Appleseed Project.

To learn about products that can help reduce and relieve the unpleasant and uncomfortable side effects of chemotherapy and radiation treatment please visit www.LotsToLiveFor.com

This blog post is part of the Resource Roundup series sponsored by Cancer Blog: Lots To Live For! in which the spotlight is shined on a resource that can help improve the journeys of cancer patients and caregivers. A Past Resource Roundup  was Caring Bridge.




Tuesday, October 23, 2012

Eight Awesome Tips To Help Cancer Patients

Acts of Kindness To Help Make Life Easier for A Patient Undergoing Cancer Treatment
By Margot Malin     

It may be an awkward moment when you learn that a friend, loved one, or coworker has been diagnosed with cancer. You may initially be at a loss for words and yet you want to offer empathy and comfort. Here are 8 Tips and Helpful Gifts of Kindness so you can create your own plan to help the cancer patient you know along his or her journey.

Food – Go grocery shopping – stock the refrigerator with fresh, healthy and easy to prepare items. Cook dinner for the family and deliver it.

Childcare – Cancer patients get tired, sometimes very tired. You can offer to baby sit for young children. Offer to arrange and take older children on play dates. If you know the children well, take them on a little outing – to the playground, to a movie, to a show or museum. During this stressful time, school work might suffer. Offer to tutor, or arrange for a tutor for those subjects that are particularly challenging right now.

Laundry and other daily chores – Laundry can be easily postponed when someone is not feeling well. Offer to do the laundry – at your home or theirs – or take it to a wash and fold service. Helping with other daily chores and activities can be a great way to relieve the patient of some activities which might be repetitive, tiring and stressful.

Chemotherapy and Radiation sessions – Offer to drive to radiation oncology sessions and chemo appointments. Sitting and receiving an infusion can be cold and lonely. Stay during chemo to help the time pass – you can write letters, read aloud, listen to music, or look at poetry during these sessions. Bring a warm and cozy blanket with you. Other things you can bring to pass the time: an ipad, a laptop, a Kindle, craft supplies.

Doctor appointments – Offer to drive to a doctor appointment or accompany the patient on public transportation – and if the patient is open to the idea – be present when the patient speaks with the doctor. A second set of ears is a welcome addition during this stressful time. Maybe you can think of questions that the patient might be too overwhelmed or nervous to consider. You can also take notes about the visit to be sure that the important takeaways are remembered.

Medical record keeping and medical research – You can help by doing medical research about the patient’s diagnosis as well as research into complimentary and alternative therapies. Personal health record keeping is especially important during treatment and beyond. Consider purchasing either a special loose leaf / workbook to keep track of paper records, or the Minerva Health Manager, electronic personal health record software.

Side effect solutions – There are many products to help unpleasant and uncomfortable physical side effects of chemotherapy and radiation. For example, you can find products to help radiation dermatitis, radiation burns, hair loss, dry mouth and mouth sores, nausea, and more. To learn about products that can help reduce and relieve cancer treatment side effects visit www.LotsToLiveFor.com.

Books, CD’s and Music – There are many inspirational books written by, and about cancer patients. Just two examples are: From Incurable to Incredible – Cancer Survivors Who Beat the Odds written by Tami Boehmer, a cancer survivor and When Cancer Hits – A Complete Guide to Taking Care of You Through Treatment authored by Britta Aragon, also a cancer survivor. There are rest and relaxation CD’s. Breast Cancer Yoga has created a CD for breathing and meditation and a DVD for gentle yoga. Recovery Fitness also has an Exercise for Cancer Patients DVD. There are also CD’s and DVD’s available to reduce stress and enhance relaxation.
A little thought and creativity can help you come up with many other helpful ideas. You can even ask the patient to give you a wish list of what kind of help they might appreciate for their situation. Some of the best expressions of support are inexpensive and some are free – but they are all priceless to the patient receiving your kindness.

Margot Malin is the CEO, President and Founder of Lots To Live For, Inc. which sells carefully selected products to reduce and relieve the uncomfortable and unpleasant side effects caused by chemotherapy and radiation. Lots To Live For, Inc. was founded after the passing of Margot’s mother and grandmother who both fought courageous battles against cancer.

To find products to help reduce and relieve the uncomfortable and unpleasant side effects of cancer treatment please visit: www.LotsToLiveFor.com
Visit our facebook page at: www.facebook.com/LotsToLiveFor for information and inspiration!

Wednesday, October 3, 2012

Cancer Survivors Who Beat the Odds – Attributes of Survivors Who Became Thrivers

by Tami Boehmer, Guest Blogger
Learn how to win a copy of Tami's book at the end of this blog post.

I was first diagnosed with breast cancer at age 39 in 2002 after finding a lump during a breast self-exam. There was no history of breast cancer in my family, so I was shocked, to say the least. Two weeks later my father died. My daughter was three, and my husband and I had been married less than five years. It was a devastating time, but I was heartened when my doctor told me I had no lymph node involvement and my prognosis was excellent.

After five years, chances are slim cancer will return. But again, I learned you can’t pay attention to statistics. In February 2008, I found a lump in my armpit, and after a series of scans, I learned it had returned as stage IV cancer. I went to a world-renowned cancer hospital only to be told I would certainly die from breast cancer. Luckily I turned it into a challenge to prove the doctor wrong.

I spent my career in healthcare public relations, and always loved writing patient success stories. I already knew my friend Buzz Sheffield, who was told five years earlier he had months to live. (Today, eight years later, he is alive and well.) I also read Bernie Siegel’s wonderful book, Love, Medicine and Miracles, which talked about Exceptional Cancer Patients and how the worst thing doctors can do is to give death sentences.

So I started my search for more incredible people who beat the odds of terminal cancer for my book, From Incurable to Incredible. I was searching for answers. It was an extremely personal journey. As someone facing a Stage IV breast cancer diagnosis, you could say my life depended on it.

My biggest question was: What sets people apart who beat the odds of a terminal or incurable prognosis? As I was putting the 27 stories together, I noticed many similarities among survivors nationwide who shared their stories. Rather than passively accepting their circumstances; they decided to transform them by:

• Refusing to buy into statistics and the death sentences many of them were given.

• Never giving up, no matter what. They may have had down times, but were able to pull themselves together and do what they needed to do.

• Relying on support from family, loved ones, or support groups. These connections gave them a reason to carry on.

• Choosing to look on the bright side and see the gifts cancer brings.

• Giving back and making a difference in other people’s lives, whether it was fundraising, lobbying, or supporting other survivors.

• Having a strong sense of faith. Even if they didn’t believe in God, they believed in something larger than themselves.

• Being proactive participants in their health care.

• Viewing their lives as transformed by their experience.

I continue to share stories of amazing cancer survivors on my blog, www.MiracleSurvivors.com, and continue to see these common threads. But I’ve found there are people in the cancer community who are offended by these observations. “Are you saying that people who didn’t make it weren’t positive enough?” Absolutely not! Cancer is complex, and I do know people who possess all of these qualities and still succumb to this awful disease … two of them whose stories are in my book. There are no absolutes or guarantees. In the midst of dismal statistics for people with late stage cancer, my purpose is to help show there are possibilities. There is always hope, and there are ways to live life to the fullest … with purpose and joy. As Deb Violette, a lung cancer survivor and advocate featured in my book shared, “This little voice in my head said, 'Why are you focusing on the 90 percent of people who didn’t make it; why don’t you focus on the 10 percent who do?'" She was diagnosed in 1998 and is very alive and well today.

No one should put a period where there should be a question mark.

Tami Boehmer is a speaker and an award-winning blogger and author. From Incurable to Incredible is available on Amazon.com and BarnesandNoble.com and via Tami’s blog, www.MiracleSurvivors.com.

If you are interested in reading the inspirational true health stories of cancer survivors who beat the odds, you can purchase the book from Amazon by clicking in the box below. Win a FREE copy of the book by visiting the Lots To Live For, Inc. facebook page by 10/7/12 by clicking here.


www.facebook.com/LotsToLiveFor  - To enter the raffle to win a free book "like" the page and "like" the blog post. Comment if you feel inspired.

To learn about and purchase products that can help reduce and relive the unpleasant and uncomfortable side effects of chemotherapy and radiation visit www.LotsToLiveFor.com. You will find solutions for: radiation burns, radiation dermatitis, dry mouth, mouth sores, nausea, sensitive and compromised skin, hair loss, and more.

Friday, September 14, 2012

The Genesis of Lots To Live For, Inc.- An Interview with IdeaMensch


IdeaMensch is a community of entrepreneurs who share how they bring their businesses to life. Margot Malin, the founder of Lots To Live For, Inc. was interviewed by IdeaMensch on September 4, 2012. IdeaMensch probes about the genesis of the business with insightful questions that let the founder's ideas, beliefs and experiences shine through.

Some excerpts of the interview:

"Where did the idea for Lots To Live For, Inc. come from?

The genesis and inspiration for the company came from watching both my mother and grandmother fight courageous battles against cancer while simultaneously trying to maintain normal lifestyles. Lots To Live For, Inc. offers one-stop shopping and solutions for cancer patients, by selling products and offering tips to alleviate, reduce and relieve unpleasant and uncomfortable side effects of chemotherapy and radiation.

Side effects from cancer treatments can be debilitating. During my mother’s and grandmother’s treatments, we found some really helpful products after exhaustive searching. It occurred to me that consolidating these items in a single place would be extremely helpful to others who are going through treatment. Our business slogan is: We recognize that you have lots to live for, and we offer solutions so that you can improve the quality of your life."

In the interview Margot also offers some advice to aspiring entrepreneurs - below is a quick quote:

"As an entrepreneur what is the one thing you do over and over and recommend everyone else do?
Keep your eyes and ears open. Treat customers and suppliers with respect. Read a lot. Try to think outside of the box. Look for disruptive technologies and try to jump on the wave. Never fall into the OPM (other people’s money) mentality. Treat equity investors’ money as if it were your own. Don’t spend frivolously."

In another section of the interview, Margot offers some personal inspiration to readers.

"Can you offer some words of advice for our readers’ personal lives?
1. Always act with integrity.
2. Accept personal responsibility.
3. Life is a marathon, not a sprint. Take time to have fun and reflect. Smell the roses.
4. Believe in yourself.
5. Dare to be different.
6. Be careful of the footprints you leave. Unfortunately, your indiscretions or social media gaffes can haunt you."

To read about some of the challenges in bringing Lots To Live For, Inc. to life, as well as thoughts about business opportunities, and general observations and advice about life you can read the complete interview with Margot Malin on the IdeaMensch website by clicking here.

Please visit www.LotsToLiveFor.com to learn about products to help relieve the unpleasant and uncomfortable side effects of chemotherapy and radiation. Lots To Live For, Inc. welcomes you as a facebook fan at www.facebook.com/LotsToLiveFor.

Thursday, September 6, 2012

Are You Prepared for a Medical Emergency? The Importance of Medical Records and Emergency Contacts

By Margot Malin and guest blogger Dan Schiavello

Back to School offers a time for fresh beginnings.
Have you created a back to school check list? Clothes, books, pens & pencils, shoes, rain gear  - what items can you check off?

Maybe the most important items are not even on your list.  Have you considered:
1. Organizing family health records?
2. Identifying emergency contacts or designating a medical advocate?

You don't have to be a school parent; you don't even need to have children to use the month of September to get your health records and Emergency Contacts up to date and in order. It can save your life or the life of a loved one.

The Importance of Personal Health Records

You don't have to be sick to create a personal health record. In fact, the best time to organize your records may be when no one is in a crisis mode.  Why organize your records?  Whether individuals and their families are relatively healthy and going for a routine doctor's visit, or managing a chronic condition, many want to be actively involved in thier healthcare experience. At some point in time most families have children who might be going on a field trip, on a music competition, to a multi day extracurricular event such as choir, DECA or Model UN. Medical situations requiring health history can develop during participation in junior varsity or varsity sports, or a traveling sports program and parents are not always readily available under these circumstances. Also consider that accidents or illnesses can occur when children are on a teen tour, traveling abroad on a summer program for a semester or are away at college.

An appropriate medical record should contain physician contact information, insurance information, detailed information on medical alerts, emergency contacts, health conditions, medications, allergies, illness history and immunization records. Medical records can also store test results such as radiology reports (X-Rays and MRI's). Lack of information can lead to devastating medical oversights. Access to medical information, whether you have a medical emergency just down the street or halfway around the world, can help keep you and your family safe.

Medical records should be thorough. They can start as "analog" records and be created in a loose leaf binder, or a series of folders. However, digital records - also called personal health records - are easier to carry, and can be easier to interpret because they are methodically organized.  Digital health records can also be more thorough since personal health record software can prompt you for items that might otherwise be forgotten or omitted.  MRI's and X-Rays can be stored on electronic personal health records which means you won't have to carry around unwieldy bags or folders filled with radiology images and reports. It is important to note the difference between personal health records and the computer records which many physicians are starting to use. They are not the same thing. Your personal health record carries all of your personal health information. Most physician records only include the records that you create in one specific physician group or hospital. Said in another way, personal health records differ from the electronic health records maintained by physicians which are usually physician specific and usually not coordinated among providers.


One example of an electronic personal health record is the Minerva Health Manager.  You can read more about the surprisingly affordable Minerva Health Manager by clicking here. With your complete health history in hand — whether printed as a report from your own computer to your own printer, or carried on your Minerva slimline or wristband Flash Drive, iPhone, iPad or Android — you are in a better position to receive the very best health care for you and your family. Minerva Health Manager includes family health history reports that record hereditary health conditions in your family tree — so you can work with health care professionals to take the right steps to help maintain your good health, as early as possible. Minerva can empower you to make good choices for your health. 

Finding an "Emergency Contact"

When your children are going back to school, you are usually asked to provide a list of "emergency contacts" - people who are ready to stand in your shoes, and be called in the event that you are unreachable when a health situation develops.

Do you know what kinds of characteristics are important in emergency contacts?
First and foremost - the emergency contact has to know that they have been designated as a contact! It is surprising how many people choose a friend and write the friend's name on the emergency contact form without even asking them!

Here are some other things to think about when selecting an emergency contact:

1. Will they be available in case you can't be reached? Contacts that have jobs that are a long commuting distance from the school or sports arena are not ideal. Contacts who travel frequently and are often out of town are not ideal. Distant relatives are not appropriate emergency contacts for this situation.

2. Does the person agree to be an emergency contact? Explicitly ask them. Do not assume. You would like someone who agrees to step in to act on your behalf in an emergency not someone who doesn't even know that they have been designated, and may feel uncomfortable in the position.

3. Do they know the important medical information related to your child?
This means any allergies (especially to medications), the names and locations of primary care physicians, your child's insurance information and other details that you deem important.  Having a carefully completed personal health record available for your emergency contact is very helpful and could become life saving under certain circumstances. The Minerva Health Manager is one type of personal health record that combines ease of use with portability. You can give a flash drive to your emergency contact, or have your child carry it in their backpack for accessibility at all times.  If your child has a personal health record, make sure to let your emergency contact know!

4. Do you trust them to stand in your shoes until you can be reached or until you arrive to take over?

5. Do they ask important questions?

6. Will they remain calm?

7. Do you trust their decision making capabilities, especially related to medical issues?

The designation of an emergency contact is an important consideration. Many people do not give this the thought that it deserves.  Did you know that medical errors are the third largest cause of death after heart disease and cancer?

An emergency contact is not the same as a medical advocate, though you might also consider some of the characteristics described by Michele Robson in her medical advocate article by clicking here. A medical advocate is an even more demanding position. The characteristics described in Ms. Robson's article such as: having a big mouth and being tough and reliable can also be important considerations for emergency contacts.

September is an important time of year to update and review the medical records of your children and your family. It also provides the opportunity to consider who you trust to be available to step into your shoes in case you are not available when an emergency occurs. Many people don't take this process seriously. Don't be one of them! Having organized medical records and a competent emergency contact can save the life of a loved one in an emergency.

Margot Main is CEO, President and Founder of Lots To Live For, Inc. - a website that sells products to help reduce and relieve the unpleasant and uncomfortable side effects of radiation and chemotherapy.

Dan Schiavello is President and Founder of Minerva Health Technologies. The medical information stored on a Minerva Health Manager flash drive actually saved Dan's life when he was taken to an emergency room.

Both authors have experience filling out numerous health records and emergency contact forms for their children and other family members over several decades.