Tuesday, July 10, 2012

Not My Mother's Journey: Author Heather St. Aubin-Stout Shares Her Personal Story

Guest Blog by Heather St.Aubin-Stout; author: Not My Mother’s Journey
The Importance of Sharing Your Story - Catharsis and Inspiration

Heather shares her personal story about breast cancer and her passion about supporting those going through the journey.


From the time I could read and write I wanted to be an author.  Looking back on this now, I'm not sure this was really what I wanted to do or if this was something that was projected onto the oldest daughter by her mother who loved to write.

Although I went to college for architecture, and had a career in the field of architecture before my children were born, I continued to write for myself.  After staying at home, working part time substitute teaching and doing much volunteer work I was ready to go back into a career when I was diagnosed with breast cancer.

Then in 2009 at forty-six and in remission for a year after two bouts of breast cancaer within the last three years, I began to write again.  It was a release, it was cathartic, and although it was also painful to re-live everything, if was also exciting to do something I had thought about for years.

I felt the need to write about my experience and how it was different from my mother's, who at forty-five died from breast cancer just a year and a half after her diagnosis.  A life unfinished.

I was twenty-four at the time and two weeks away from getting married. Her doctor had told her not to plan on being at my wedding. Of couse the month before - when he told her that - we were outraged.  A few days before she died, the hospice nurse asked what I would do if my mother didn't live to see me get married.  I broke down in tears; it was unimaginable to me that she might die in the next week.  At this point during her illness my mother was not the mother she had been during the rest of my life.  I just refused to see it.

My mother was a stay at home mom, she was there for my two younger sisters and me while we were growing up.  She went back to school when I was in college, moving from ther Bachelors to a Masters in Clinical Psychology.  She was disgnosed during hter second year.  She plowed ahead with internships, classes, and her thesis anyway while she was going through treatments.  However, she never did get her thesis completed.  My father, sisters, and I accepted the first posthumous degree ever awarded from University of North Carolina at Charlotte the year after her death.

For years it seemsed cruel to me that death took her before she could finish her degree and experience the rewards of a career.  However, looking back on it now, she shaped all of our lives during those years she was at home with us.  This is a gift I've just now begun to realize and treasure.

So, here I am at forty-eight and trying something new. I've reinvented myself, yet again.  I've found, as I've matured, gathered those life experiences one can only gather from aging, that each of us has many facets to ones self.  These parts of ourselves can come out when we don't expect it.  Breast Cancer did this for me.  It taught me humility, patience and perseverance.

My book, released in January 2011, Not My Mother's Journey is my story, my mom's story and hopefully it will encourage anyone facing a diagnosis of cancer to be their own best advocate - our doctors have many patients, but we only have one.  Ask questions, interview your doctors, share your journey with others, because it may help someone else.
Ironically, despite the similarities of being diagnosed about the same age as my mom, I tested negative for the BRACA genes (a genetic predisposition).  So when my cancer recurred at the one year scans, the same time my mom's had metastasized, I had to battle psychological demons for the second year in a row.

As of this writing I'm in remission...with my friend NED- No Evidence of Disease!
So my journey continues to evolve and for this I am grateful.
I hope I've written a compelling story, that makes the reader think, one that you can relate to, and one that will validate your own feelings.  I hope it is a story that moves and inspires you in your life.  I have tried to do this.  You tell me!  You can visit my website at http://www.sharingmystory.com/ and connect with me. I welcome your feedback.




You may purchase my book via the website http://www.sharingmystory.com/, by clicking the Amazon link above, from http://www.barnesandnoble.com/, www.xlibris.com in print or ebook format.
 
For products that can be helpful in relieving uncomfortable and unpleasant side effects during treatment for cancer please visit http://www.lotstolivefor.com/. This is a useful and informative website for patients, caregivers, oncology nurses, cancer coaches and friends and relatives of cancer patients. On Facebook we post helpful information about new developments in cancer treatment, new products and resources. Please "like" us at www.facebook.com/LotsToLiveFor
 
To be your own best health advocate, consider purchasing the Minerva Health Manager personal health record software.  It might help to save your life. You are your own best advocate!

Tuesday, June 26, 2012

New Book: Skin Care Guide for People Living With Cancer


This new book makes a wonderful gift for a cancer patient. It has important and helpful information for individuals undergoing treatment for cancer, and is especially informative about cancer side effects.



Click here to buy this book on Amazon. View the book on Amazon.com.

Book description from the publisher:
"More people than ever before are living with and surviving cancer. However, the human cost of life-saving cancer treatment may be unexpected side effects to the skin, hair, and nails. How can patients navigate these changes without affecting their treatment, their appearance, or even their sense of who they are? Dr. Lacouture's Skin Care Guide for People Living With Cancer is the first book written by a board-certified dermatologist to help patients care for treatment-associated skin, hair, and nail toxicities, which can range from mild and annoying to serious enough to affect health, treatment, and quality of life. In this book, Dr. Mario Lacouture discusses a number of side effects that may rise from chemotherapy, biologic therapy, radiation therapy, stem-cell transplants, and other tools in the fight against cancer. He offers a number of practical suggestions that are useful to people living with cancer, including preparation for the rash, itching, or dry skin that may come with treatment; care for the fingernails, and suggested products that will contribute to their health; awareness of the risks for hair loss, and resources that patients may need to cope; suggested moisturizers and cosmetics that are appropriate for patients' use; and specific information for survivors. Written by one of the foremost experts in the dermatologic side effects of cancer treatments, Dr. Lacouture's Skin Care Guide for People Living With Cancer offers patients clear information and practical suggestions for preventing, treating, and living through these changes during their cancer journey."

Lots To Live For, Inc. is dedicated to helping cancer patients who are experiencing unpleasant and uncomfortable side effects from cancer treatment. Lots To Live For, Inc. has an website that offers "One Stop Shopping and Solutions for All Cancer Side Effects" - selling products for skin care, hair care and nail care. Some of the product lines that http://www.lotstolivefor.com/ sells are mentioned in this book, such as the LindiSkin skin care line. Visit Lots To Live For, Inc. to find products to help alleviate cancer side effects.

You can also find Lots To Live For, Inc. on facebook. We post practical articles about dealing with cancer side effectsand interesting articles about new developments in cancer therapy. Please "like" us at www.facebook.com/LotsToLiveFor

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Tuesday, June 12, 2012

Are Metastatic Breast Cancer Patients Getting the Right Treatment?

According to a recent on line article by Melissa Weber published in www.curetoday.com as many as one in seven women with metastatic breast cancer could be receiving the wrong treatment because of a change in the cancer’s biology when it metastasizes.

“When breast cancer spreads to another part of the body, a HER2-positive cancer could become HER2-negative. Or estrogen receptor-negative cancer could switch to estrogen receptor-positive. Despite different treatment strategies for each, most oncologists rely on what they know about the primary breast tumor to fight the metastasis, says Giuseppe Curigliano, MD, PhD, co-director of the division of medical oncology at the European Institute of Oncology in Milan, Italy. But researchers now believe inhibiting one cancer growth pathway with treatment may activate signaling of a new pathway that allows it to survive and spread.”

A study presented over the summer at the annual ASCO meeting showed that in certain cases when the metastatic lesion was tested, it did not match the primary tumor. There are a few different hypotheses for why this might happen. “Experts suspect that because tumors are made up of different kinds of cancer cells, a small fraction of cells may have a different receptor status. If those cells are more resistant to cancer therapy, the resistant cells may outgrow the rest over time. At the time of recurrence or progression, the overall tumor will have subsequently appeared to have ‘switched.’”

Being aware of the potential that the biologic characteristics of the metastatic lesion might not match that of the primary lesion can have implications for treatment. The researchers quoted in the study suggest that rebiopsy should be performed after considering the safety of the procedure.

To read the full article on line on the curetoday.com website please click here.

For products that can ease side effects of radiation and chemotherapy for breast cancer patients, please click here.

Great Gift Ideas for Cancer Patients from the Inspired Wellness Blog

When a friend, relative or co-worker tells you that they have cancer, you may be at a loss for how to respond, and wonder how you might help.

In a recent guest blog post on the Inspired Wellness Blog, we share some thoughts and ideas about Helpful Gifts for Cancer Patients. We share thoughts about how you can offer empathy and comfort.  Great gifts can be simple acts of kindness, products to ease side effects, inspirational items, or items to create a sense of well being and reassurance.

There are many daily tasks that you can offer to take over to help - such as grocery shopping, cooking meals, carpooling, and babysitting among others.

If you would like to give a physical gift consider gifts that can help alleviate unpleasant and uncomfortable side effects of cancer treatment.

You can read the full article on the Inspired Wellness Blog by clicking here
Please read it and share it with others.

You can find gifts for cancer patients at http://www.lotstolivefor.com/
Below is a picture of the Fighting Back Gift Pack with items to help compromised skin caused by chemotherapy and radiation. You can check out other helpful and considerate cancer gifts by clicking here.

Thursday, May 3, 2012

Lots To Live For, Inc. Wins Top Honors in StartupNation's Leading Moms In Business Competition


From among thousands of contestants, Lots To Live For, Inc has been ranked #22 in StartupNation.com’s 2012 Leading Moms in Business competition , sponsored by Web.com and Sam's Club.  
Over 350,000 votes were cast in support of the 2012 contestants, reflecting immense interest and supportiveness for moms building businesses at the same time they tend to their families.
“There’s been a sea change among moms as they’ve come to realize that adding entrepreneurship to their lives brings exhilaration and immense gratification, not to mention supplemental—sometimes primary—income to their families in these dicey economic times,” says Rich Sloan, chief startupologist and co-founder of StartupNation.
Margot Malin, President, CEO, and Founder said “We are thrilled that our customers, friends, and suppliers have shown overwhelming support by voting for us. Lots To Live For, Inc. is an internet retailer that sells carefully selected products to reduce and relieve the uncomfortable and unpleasant effects caused by chemotherapy and radiation.  The genesis and inspiration for Lots To Live For, Inc. came from watching both my mother's and grandmother’s courageous battle with cancer. “ The winner’s profile for Lots To Live For, Inc. can be found at: http://www.startupnation.com/leading-moms-in-business/contestant/11654/index.php
The 2012 Leading Moms in Business ranking highlights some of the dominant trends, motivations and attributes among moms in business. They include:
·         A great eye for providing attractive discounts, coupons, savings and value, all especially important to consumer moms of the recession era.
·         A likelihood to come up with innovative products and solutions to address the challenging maze of motherhood. It’s an environment that demands resourcefulness.
·         Conscience-driven business, where “doing well” is just fine, but the real rush comes from doing good.
Lots To Live For, Inc. Logo
·         The attraction of being your own boss looms large for moms wanting to take control they just can’t find in a day job.
·         Sustainable solutions and responsible business practices are increasingly paramount.
·         Making the most of social media for business benefit is seemingly a birthright for the socially adept moms.
The Top 200 Winners of the Top 2012 Leading Moms in Business ranking are available on StartupNation’s website at http://www.startupnation.com/leading-moms-in-business/2012-winners
Lots To Live For, Inc. sells products that offer innovative solutions to cancer side effects. Many of the products sold on the website have been developed by entrepreneurs whose lives have been affected by cancer.  For more information visit http://www.lotstolivefor.com/.
Visit the Lots To Live For, Inc. facebook page at www.facebook.com/LotsToLiveFor

Monday, April 23, 2012

Cancer Coach - Trained to Help Cancer Patients Along Their Journey - Could a Cancer Coach Help You?

BREAST CANCER. A CO-ACTIVE COACHES JOURNEY
by Sue Bock (guest blogger)

Breast cancer. When I first heard the words, I was stunned. The earth dropped out beneath my feet. As time passed, my feelings evolved, the roller coaster ride of emotions from high to low became more of a child’s ride. I went from craving knowledge to how will I carry myself through the journey of treatment and after. I was already a trained co- active life coach, now how will that help me?

A Co-Active Coach trained at the The Coaches Training Institute uses a “tried-and-true approach that provides a powerful process for engaging with others and is supported by current scientific research. Our program is built on the cornerstone that we are all naturally creative, resourceful and whole and that we all possess the capacity for knowing what is best for ourselves. From this place, the Co-Active Coach comes from a place of authentic being, listening and encouragement, to uncover the best in oneself and others.” This is where I started. Now I help other breast cancer survivors transition from breast cancer treatment to breast cancer thriver. Leading a fulfilling life is possible after breast cancer. After the dust settles and the “normal” life returns, a Wellness Coach partners with the client to pave a path, so to speak. The client makes choices to answer the burning question of, “what is next?”
There are many hurdles to jump after breast cancer, and a Co-Active Coach is there to soften any bumps along the road. Often after breast cancer, women (and there are some men) find themselves at a loss. No longer is the support the same. The medical team is less a part of their lives and it may feel like they are alone in their quest to find answers. Coaching is a way to creative problem solve in a positive and safe environment.

In The International Journal of Interdisciplinary Social Sciences, Pam Schmid shared the following testimonial:“Coaching made lasting, positive changes in the cancer survivors’ llives. Instead of being stuck, they have a partner to start moving ahead to be their best,” said Schmid. “As one survivor told me, ‘This is not like anything I’ve experienced. It’s given me a pathway out … I need to move forward to do the things I know I need to do to be my best’.”

I inspire women to dream, change, and live life’s adventure courageously. Breast cancer doesn’t define you. It frees you to arrive at different choices.

Cheers
Sue Bock
You can visit Sue's Courage to Adventure Coaching website by clicking here

For products that can help reduce and relieve cancer treatment side effects visit: http://www.lotstolivefor.com/

Monday, April 16, 2012

What Is An Oncology Nurse Navigator?

By Pam Matten, RN, BSN, OCN

The diagnosis and treatment of cancer and living with the disease can be overwhelming for many patients and their family members. The maze of oncology services that families are asked to go through can be intimidating and daunting. A nurse navigator is a professional who comes alongside the family undergoing the cancer crisis. He/she may follow the patient from pre-diagnosis through the continuum of care. The navigator will ensure that the patient is given timely care for appointments, tests and procedures. She educates the patient on treatment options, medication and chemotherapy side effects, and clinical trial options. She may also provide psychosocial support to the patient and family. The navigator will provide resources and referrals to the family such as: financial assistance, support groups, transportation options and complimentary wellness opportunities. The nurse navigator role is integral for families as they navigate through the complexities of cancer care.

Most National and community cancer centers are using nurse navigators for individual types of cancer. For instance, there may be breast nurse navigator who deals specifically with patients diagnosed with breast cancer. It is important to understand that the role of navigator is diverse. You may find lay navigators who reach out to a particular community of patients or lay navigators who assist with more specific care such as those who coordinate initial consultations for treatment. If you are fortunate to be offered a lay or professional navigator I believe you will find them to be individuals who offer empathy and support during a difficult time. If you are not made aware of navigation services when you are newly diagnosed you can ask either your physician or cancer center if navigation services are provided.

Submitted by Guest Blogger:
Pam Matten, RN, BSN, OCN
Pam Matten is an oncology-certified nurse, specializing in thoracic oncology. She has been the Nurse Navigator for lung cancer patients at the Center for Cancer Prevention & Treatment, St. Joseph Hospital, orange. CA for over 9 years. Pam is also a public health nurse, tobacco treatment specialist, health instructor and yoga teacher.

For more information about oncology nurse navigators:

To find products to help reduce and relieve cancer side effect symptoms visit: http://www.lotstolivefor.com/